26F 5'2", 247lbs.
Diclofenac, Latuda, Lamictal, Klonopin, Baclofen, Lyrica, Buspar, Ramelaton, Duloxetine, Metformin, Addiy. Benedryl every 4hrs.
I am aware I am on a lot of medication, I have done numerous medication reviews, I cannot change anything currently even if I wanted to before we do the EEG. Meds have not been adjusted whatsoever in half a year asides from benedryl.
HSD, SI Joint dysfunction, Nerve pain, BPD, PTSD, chronic long-term constipation.
It started after I got very very sick (like piss myself at work sick) two months ago. It was confirmed not COVID or the flu. After that, I began experiencing migraines for the first time in my life. They're in a different place every time, ranging from pressure behind my eyes, to what almost feels like a nauseating visceral brain freeze. They are not localized in one area or one side of my head. Benedryl stops these, Nurtec does nothing, Dramamine does nothing
Then I began experiencing extreme dizziness. If I'm awake longer than 5hrs at a time, everything becomes static-y, especially when turning. Like you've stood up without breathing. My vision will blink out and I will begin to black out and cannot keep my balance. If I wait too long to sleep, this then turns into feeling as though the room is spinning on its axis, worse when my eyes are closed. Diclofenac helps with this.
Short of breath constantly but o2 stats fine. If I go too long without the Diclofenac, everything in my face becomes severely inflamed- my sinuses, the roof of my mouth, my jaw, my ears become hard to pop and painful. It constantly feels like I'm hanging upside down, and the blood is pooling to my head, worse when bending down and standing up. I cannot do any activities that require bending down and standing up without risking passing out.severe pressure and pain in my eyes.
Eyes around iris and eyelid grow puffy only at night, with or without eye drops, with or without benedryl.
I cannot hear well. I can tell there's sound, but I can't interpret it unless it's louder than normal. I've had to turn the volume up on every device I use for the first time.
Weight briefly went up 7lbs in 8 days, no edema, but has gone back down and stabilized.
Any type of outing, or even just getting dressed, leaves me wiped and extremely fatigued for several days after. I have been unable to leave my apartment with one exception for weeks.
Heart palpitations.
I've started experiencing severe night terrors where I will thrash my head/shake and whimper at night. My fiance has to wake me up.
I have started, for the first time, experiencing flashbacks very vividly. For the first time also, I can picture faces. My pets, and my partner.
I have severe strabismus. Lately I've found it incredibly easy to pull my eyes together, and I can see more in 3D than normal.
My hallucinations came back in a weird way. I heard my fiance's ringtone for 3 days straight, and kept seeing black spots on the wall in the corner of my eyes. I began eating with the Latuda, and it has since thankfully ceased.
I've started experiencing severe acid reflux.
I've stopped eating and primarily drink sugary drinks.
My hands have begun twitching uncontrollably at night and I find myself with my jaw hinged to the right when at rest, which pops it out of place. I crunch it back.
Due to the severeness of these symptoms, I have been out of work for a month on medical leave. I cannot afford to miss more work. I have to use a shower chair due to being a fall risk.
I've been to the ER 3x, the walk in 2x, and my PCP 3x, Neurologist once, opthamologist once. EKG normal, CT scan and MRI w/o contrast of brain normal, ears grossly clear. Basic metabolic labs normal asides from increased WBC. We have a lumbar puncture on the 11th to rule out IHH, I have to schedule an EEG to rule out seizures (we deem this unlikely) and I have trypase (?) labs waiting for me to complete to rule out MCAS. Opthamology showed normal, no swelling of optic nerve or inner eye.
Please help me. I want my life back. I want to shower independently. I want to go back to the job I love. I want to stop relying on my partner so much. I want the appointments to stop. I am so, so tired. I just need an answer so we can fix this somehow. Please, if anyone has any ideas, please help.
Thank you so much